Diet |
Colostomy guidelines |
• Consume vegetables and whole grains to prevent constipation |
• Antibiotics or dairy products may cause diarrhea |
• Try lactose-free products |
• White rice, potatoes, or pasta can help thicken stools |
• Hydrate with a cup of water after emptying the pouch |
• Replenish electrolytes with sports drinks |
• Call your doctor if constipation or diarrhea persists, or if dietary modification is not helpful |
Ileostomy guidelines |
• Start with low-fiber foods and try solid foods one at a time |
• Stop eating these foods if they cause any symptoms, then try them again within 2–3 weeks |
• Drink 8–10 glasses of fluid every day unless your doctor tells you otherwise |
• Sugary beverages, such as fruit juice and soda, should be limited |
• Because your pouch may fill more quickly than normal, you will need to empty it more often |
• Call your doctor if you show signs of dehydration or have three or more consecutive loose stools |
Avoiding blockages |
• Large food particles can more easily become obstructed in ileostomy patients |
• A food blockage can cause abdominal cramps, pain, and watery stools with a bad odor |
• Avoid high-fiber foods that absorb water (e.g., oats, citrus fruits, apples, and beans) for the first 6–8 weeks after surgery |
• Avoid food suspected to cause a blockage, and slowly add this food back into your diet |
• Nuts, popcorn, coconut, dried fruits, celery, mushrooms, foods with fibrous peels, and raw and crunchy vegetables may cause blockages |
• Eat slowly, chew food thoroughly, and drink fluids with meals |
Physical activity |
• Empty ostomy bag before starting exercise |
• Start with low resistance and progress slowly under the guidance of trained exercise professionals |
• Ostomy patients may be at an increased risk of parastomal hernia |
• Correct lifting technique and good form are important to regulate intraabdominal pressure |
• Avoid the Valsalva maneuver |
• Modify any core exercises that cause excess intra-abdominal pressure |
• Get medical advice to ensure that you maintain optimal hydration before, during, and after exercise |
• When participating in contact sports or when there is a risk of a blow to the ostomy, consider wearing an ostomy protector/shield |
Physical symptom management |
• How to handle damage from feces |
• How to manage allergic reactions |
• Emergency calls and frequently asked questions |
Psychological symptom management |
Fatigue |
• Energy-consuming tasks in the morning |
• Regular activities with sufficient break |
• Set balanced diet plans |
• Improve sleep quality |
• Spend time doing what you like with people you love |
Anxiety |
• Remove factors that enhance anxiety (e.g., caffeine or nicotine) |
• Discuss your feelings with family and friends |
• Try to talk spontaneously |
• Find a person for emotional support |
• Do not blame other people for your anxiety |
•• Try to find the main reason for your anxiety |
Depression |
• Talk about feelings with medical staff and family |
• Regular activities with a sufficient break |
• Make a prescription list and share it with medical staff |
• Deep breathing and meditation |
Daily life guidance |
Travel tips |
• Precut all pouches at home |
• Know your stoma size in both metric units and inches if you will be traveling out of the country |
• Pack supplies in carry-on and checked bags |
• Take extra supplies in case you become stranded |
• Expect to be screened without prior notice |
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Transportation guides |
Road |
• In a car, you can stop when you want to |
• Many restaurants and carryout food stores have toilets and you can often use these |
• On a bus, you may find toilets on board or have sufficient space to empty a bag |
• Be aware of your ostomy equipment in the car trunk because this is the hottest part of the car in hot weather |
Rail or sea |
• There are usually adequate toilets or spaces to change your stoma bag on board |
Air |
• Remember to empty your bag in the departure lounge toilets while you are waiting to board your plane |
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Intimacy |
• Allow some time to heal, both physically and emotionally |
• The usual discomfort, fatigue, and occasional depression can have a direct effect on your desire and libido |
• Doubt and anxiety prevent focusing on your partner |
• Accept yourself, feel comfortable and confident in your approach |
• Think about how you can approach sexual activity in a relaxed, non-pressured manner |
• Open, honest communication is essential, even if talking about the stoma is uncomfortable or embarrassing for you |
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Back to work |
• Embracing a new normal in life after ostomy surgery is important for living an active life |
• The timing of your return depends on your recovery and the physical demands of your job |
• A few tips from UOAA’s Facebook community and Advocacy Network: |
1. Be prepared |
2. Know your rights |
3. Dispose/empty your pouch properly |
4. Find the best clothing for your job |
5. Don’t stress about stoma noise |
6. Hydrate |
7. Find support |